Action: Marketing & Communication

World Down Syndrome Day (WDSD), 21 March, is a global awareness day which has been officially observed by the United Nations since 2012.

Down syndrome (or Trisomy 21) is a naturally occurring chromosomal arrangement that has always been a part of the human condition, being universally present across racial, gender or socioeconomic lines in approximately 1 in 800 live births, although there is considerable variation worldwide. Down syndrome usually causes varying degrees of intellectual and physical disability and associated medical issues.

Learning Disability and Film

Learning disabled people are chronically underrepresented in the film industry. This is a time to reflect on supporting learning disabled representation in the film industry as well as consider access to cinema for neurodivergent audiences.

Released on World Down Syndrome Day 2021, Amber and Me is a documentary about friendship. Amber has Down’s syndrome and is about to start school together with her twin sister, Olivia. Although at first her experience is positive, she soon starts to struggle and asks to stay at home. Olivia is keen to keep her twin sister in the same class and so begins the struggle of keeping the girls together at school. The film follows the challenges for both girls through 4 years of school and charts the changes in their relationship, uniquely from their own perspectives.

In 2019, FAN New Releases supported Signature’s title The Peanut Butter Falcon, a modern Mark Twain-esque adventure starring Shia LaBeouf (American Honey, Fury) as a small-time outlaw turned unlikely coach who joins forces with Zack Gottsagen‘s Zak, a young man with Down Syndrome on the run from a nursing home with the dream of becoming a professional wrestler. 

You can now rent The Peanut Butter Falcon on BFI Player. (CC available)

My Feral Heart is a drama in which Luke (Steven Brandon), a young man with Down’s syndrome who prizes his independence, is forced into a care home after the death of his mother. There he rails against the restrictions imposed on him, but his frustrations are allayed by his budding friendships with his care-worker Eve (Shana Swash) and a mysterious feral girl (Pixie Le Knot).

BFI Player subscribers can watch the film My Feral Heart on BFI Player, or it can be purchased on DVD or through streaming services. (CC & AD available)

Oska Bright, based in Brighton is the worlds biggest learning disability film festival. Find out more about their amazing work here.

Learning disability and Cinema

During the pandemic learning disabled and neurodiversity focused organisations kept in touch by running online activities with their members. If you are interested in running online activity you may find some helpful resources below.

If you’re interested in running a relaxed screening to help bring in Learning Disabled audiences to your cinema, find out more in our quick tips for running relaxed screenings. You may also find some transferable advice in our autism-friendly screenings guide, though bear in mind much of this advice is specific to people living with autism, not necessarily those who are Learning Disabled. Ideally, consult with Learning Disabled groups in your area for advice and expertise.

What this toolkit is

This toolkit is, foremostly, a practical guide for improving the experiences of POC (people of colour) audiences, staff and filmmakers – and other intersections including gender, sexuality, disability, income and class. Whilst the harm and discrimination POC face in the arts both as workers and audiences is firmly rooted within institutional and systemic injustice, preventing immediate harm is the key priority – and that begins with immediate, though not as radical, reform. This goes beyond representation, and towards creating a space built for all people rather than for primarily white audiences. Whether your cinema is in a rural part of the UK, or in a densely populated city, ethnically diverse audiences are there and it is your cinema’s role to serve them. 

The second function of this toolkit is to create lasting change for future generations, and sustain your organisation in a meaningful way (one which is framed around serving communities and not merely securing funding). To do this, you must play your role in preventing harm on an institutional and systemic level. In addition to immediately actionable tools, this toolkit will encourage inner, reflective and dialogue-based work towards undoing systemic injustice. This work will be longer term, and may at times feel personal, however confronting these uncomfortable spaces from positions of privilege is fundamental to creating wider change. Treat the provocations as actionable on a personal level within your roles and workplaces, because the results will be structural change that will not allow harm to exist within your organisations. 

Who this is for

It is important that this toolkit is offered to all staff members in your cinema or film organisation; from trustees and managers to programmers and front-of-house staff. Whilst some will find responsibility placed on them to action certain aspects, others will be empowered by the conversations around equity this toolkit may enable. We implore you to talk widely within your organisation about the implications of this toolkit, in an environment in which hierarchies are cut away. Pay all staff equally to feed into this dialogue, and you will see what emerges on this new ground.  

Whilst this toolkit has been written in the locale of South Wales, it is aimed towards independent cinemas, festivals, film-based organisations and digital film spaces across the UK – responding to regional differences in audiences, access to funding, rurality and lived experience. 

What can be achieved with this toolkit

We hope that once this toolkit is worked through, you will come away with an understanding that increasing diversity and access is not a means of sustaining your organisation, but of sustaining and resourcing the communities that cinema serves. This document further hopes to provide an opportunity to reflect on your organisation’s intentions, and how to realign those back to serving all audiences and filmmakers. 

Immediate implications will be a reimagining and dismantling of old ways of working, and implementing new models of equity within your organisation and for those who enter your space (whether physical or digital). This is necessary work as a cultural space. It is always possible if there is the will to change, from staff make-up to programming practices, organisational hierarchies to an equalisation of pay; but if there isn’t a will to change, there must be a divestment of power and transference of funding to the communities your organisation is failing to serve. This toolkit will help you confront these different potentials for change. 

This is difficult work because it calls for challenging your positionality, your personal and emotional responses, your attachment to a workplace, your unconscious and conscious biases, your own stability, your lived experiences, and the harmful structures you may benefit from. Then, it calls for a letting go. Inequity is not any one person’s fault but it is our collective responsibility to understand and undo it. And finally, it calls for a real commitment to doing the work.

Download the toolkit.

Download the plain text version.

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In April 2021, Sadia spoke with BoxOffice Podcast about the toolkit. Listen here and check at the link for a full transcript of the interview.

UK Disability History Month takes place from November until December.

The UK Disability Month website offers a wide range of resources to understand the importance of the struggles of Disabled People.

Cinemas and film exhibitors can use this time to promote stories which explore the history and struggles of disabled people.

It is important that accessibility is addressed in all its complexity, encompassing the physical environment, transportation, information and communication, and services.

Cinemas across the country offer access for people who may have visible or hidden disabilities, as well as offering specific accessible screenings, such as subtitled, audio described, BSL interpreted, relaxed environment, autism-friendly, and/or dementia-friendly screenings.

Find screenings…
Your Local Cinema lists many subtitled and audio-described screenings
Accessible Screenings UK also list autism-friendly, subtitled and audio-described screenings